Our mission statement
The LGS Foundation is dedicated to improving the lives of everyone impacted by Lennox-Gastaut Syndrome – a severe epilepsy syndrome in young children that leads to life-long disability – through advancing research, awareness, education and family .
Our 2025 goals
- and educate families impacted by LGS
- Empower LGS families to seek the best care
- Raise awareness and build our community
- Accelerate research for the cures
The areas we serve
The LGS Foundation serves individuals and families locally and internationally. We are the only global organization dedicated to improving the lives of those impacted by LGS.
Fundraising events
Our annual fundraising events raise critical funds to our programs. These events include:
- April 2025 – Walk ‘n’ Wheel for LGS Research
- November 2025 – International LGS Awareness Day™
Please check our website throughout the year for more information on all of our events.
Calling all volunteers
The LGS Foundation relies on dedicated volunteers to help drive our mission and realize a future where everyone impacted by LGS can live life to the fullest. If you are interested in learning more about volunteer opportunities, please email us at [email protected].
Donation opportunities
You can make a difference for the more than one million families facing LGS. Your gift to the LGS Foundation s ground-breaking research, essential patient assistance, and critical resources for those living with this severe epilepsy. us in elevating hope and transforming lives with a tax-deductible gift today! Give online or Tiffany Johnson at [email protected] for more information on ways to give.
Lennox-Gastaut Syndrome (LGS) Foundation
Established 2008
6030 Santo Road, Suite 1, Unit 420878, San Diego, CA 92142
Phone: 718-374-3800
Website: lgsfoundation.org
Email: [email protected]
Facebook: @lgsfoundation1
Instagram: @lgsfoundation
X: @LGS_Foundation
LinkedIn: lgs-foundation
Executives
Tracy Dixon-Salazar, Ph.D., Executive Director
Kathy Leavens, Senior Director of Programs
Amber Mathas, Senior Director of Operations
Board of Directors
Karen Groff, M.Ed.
Fred Roedl, M.B.A
Natalie Gilmore
Kevin Merritt, M.B.A, C.F.A
Jacqueline Villatoro
Kat Belendiuk, Ph.D.
Dale Todd
The news and editorial staffs of Southern California News Group and The San Diego Union-Tribune had no role in this post’s preparation.